Hi, my mom is in her early 70's and has COPD. Near the very end. My Name is Maureen my husband has end stage COPD he has been battling it for quite some time now. She has declined the suggested pulmonary therapy, and for symptom management, her only medications are to take the inhalers a few times a day. Close • Posted by just now. 18 December, 2018 . My heart goes out to you. My mom has been end stage copd for 5 years. I told my mom that her Alzheimer's would get worse but am unable to tell her she will most likely pass away from it since she doesn't have any other illnesses. About Smoking Cessation Forum - My mom is dying from COPD - It saddens me how awful COPD is and that it's taking your birth mom from you. I'm so … PART 2. Introduction. My mom is 90 and was diagnosed with COPD in 1/2018. 77. I feel it will happen but I don't want to know when, at this point. Learn more about the symptoms, diagnosis, and treatment of Stage 4 COPD. COPD is the leading cause of death throughout the world. The doctor told us today that she doesn't have much longer to live. General. My dad describes it as "Stage 1", but I think this is a cancer term rather than a lung function term. Just wonderful nurses and caregivers that come and give you all the advice you need. There are drug companies that will help with this (www.pparx.org online). Edema ; Exhaustion ; Shortness of Breath ; Written by Robin Wood-Moen . Last year we called hospice in and that has been a huge help. That's 6 years wasted with no treatment. he's been in and out of hospital's with breathing problems going into distress, he's 65 and he's on end of life hospice program. The doctors then said this morning that this isn't enough, the best thing would be for her to be put under. My mom died in the nursing home with COPD /lung cancer. She no longer performs most of the basic tasks of daily living. Signs of Dying With Congestive Heart Failure. Medical Advice. I hope there were many. Latest 9/7/15 by ModDee. It was very hard. End-Stage COPD Symptoms & Complications. How special that you have found one another. My Mom's doctor told us she is at the end stages of COPD. I can't give an idea about timeframes because sometimes when things look really desperate she will rally round. In bed ridden patients, the hands and hips may swell as well. I feel completely alone. No more dr apts. I'm sad to hear that your mom is not doing well. My condolences go out to all who have to go through this. Dots and Stars Milestones. The Hospice program keeps telling him that he's got 6 months or less too live and but he's more mobile then most hospice patients are at his age. My mom is dying from COPD 19. You are so right. My mom used to skip prescription meds and take some of them every other day to save money and she didn't get a pig valve replacement surgery.   Trouble sleeping is also common. None of us want to see or do the dying part of life, but we cannot escape it. Her doctor told her that she was saving money for a ticket to the cemetery, but she didn't listen. It is a very difficult time. COPD’s course is hard to predict because it progresses at different rates. I can't imagine a more brave man then my grandfather and I believe every word he said was true. Everyone is different and for this reason it’s important to note that life expectancy is also difficult to determine. These last few years have been very hard to go through. There is currently no cure for lung damage caused by COPD, and symptoms continually worsen as this disease progresses. Follow - 1. If you have a parent with COPD, you know how hard it can be to deal with. A high pollen count was very bad for my mum and she used to suffer quite badly in warm weather. Read 10 Responses. My mom is at the end of COPD. My son and I had to sit and watch her agonized breathing for three hours because the nurses weren't able to reach the dr. to prescribe morphine.It was horrible and the memory of the look on her … How Long Can She Safely Be Intubated Before Risking Everything? COPD is a progressive illness with no cure. She’s not able to fight it off and her pneumonia is so bad, she can’t eat or drink without it getting into her lungs, further complicating her pneumonia. I am heartbroken because she is the closest family member to me. Fluid is most evident in dependent areas that are below the heart like the ankles and feet. Many people don’t recognize the signs of chronic obstructive pulmonary disease (COPD) until it is too late. Sometimes it is hard to be able to afford the meds. A very common cause of edema in a dying person is protein malnutrition. Patients dying of progressive COPD are less likely to be offered the opportunity to benefit from hospice services when compared with patients with cancer 12. Focus on the good parts of life. PART 4. If you are caring for a parent with this condition, it can be even more intense, as you are spending a lot of time in this environment. My Mom is Critically Ill in the ICU. About 2 months ago my mon got sick with pneumonia. My mom is dying. You won't believe what I found! I'm brand new to this group. Quit Buddies Unite. The worst part is, she has had this disease since August 2012, and not one Dr. ever told her she had it. An actual account of my mother's struggles and ongoing recovery from emphysema/COPD. You prob have made some wonderful memories over the past two years which you can carry with you forever. Don't feel ashamed or guilty for not being able to ask right now. My Mom has the end stage of COPD - can someone help me ; Change in O2 levels; How to differentiate SOB from COPD Exacerbation vs Panic Attack; Has Pulmonary Rehab being helpful to you? Congestive heart failure is a chronic and life threatening medical condition. I've been searching the web for information on COPD. She knew she was dying and she said she wasn’t scared she was just sad! My mum has Copd and has been taken into intensive care. It will be normal for your loved one to become somewhat dehydrated during their final days. End of life treatment is about maintaining the best quality of life possible for as long as you can. Patrik: But she also confirmed what the nurse said yesterday, that there is no evidence for a bowel perforation. It may be exactly what she needs and wants. COPD is a progressive terminal illness, so it makes sense to talk things over with your doctor. Stage IV Chronic Obstructive Pulmonary Disease (COPD) is classified as very severe and in advanced stages. Withdrawal From Loved Ones . You may request that comfort meds be given to your mom. Answer Question. The most common chronic diseases that will exhibit edema are chronic heart failure, renal failure and liver disease. Latest 9:36 AM by Eve1973. For those with severe COPD prognosis can be very poor. Okay, there’s no evid It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. Reply. This condition begins with an initial trauma to the heart or infection and symptoms can vary depending on the side of the heart that has the most damage. After she was diagnosed, I was able to look back on all her routine chest Xrays over the years and discovered this. 10 Responses jml1986. 2354 messages in 196 discussions. She has had so much anxiety and I've been by her side for that last 24 years then I've been taking care of her for the last 5 years. My mom is at the end of COPD. My mom said on the way home she asked him if he hurt, he said no, she said are you scared, he said no. To properly care for them later in the dying process, make sure they are hydrated and fed without forcing anything on them. PART 6 Julie: Okay. At first she was receiving drugs and was put on an oxygen mask. After realizing the medical industry had absolutely no viable answers or cures for this disease, I began a 4 year, 6500 hour research sabbatical to try and save her life even though her doctors said it was futile and actually, almost miraculously, reversed her emphysema. Hope your mother doesn’t suffer like my poor grandma did. My mother had very bad COPD and it was hard watching her struggle for every breath. 46626 messages in 937 discussions. Jim on October 13, 2016 at 4:31 pm . We sat with him until 3am holding his hand and talking to him of good times. It's a tough enough road to go on without feeling pressured to ask. 1 A palliative care approach has been advocated in the management of end-stage COPD but our knowledge of the experience of COPD at the end of life, how patients are affected and what access they have to services is limited. My mom is dying elisa931. Latest 2/14/19 by spartanfan. I am having so much trouble in dealing with my mom's prognosis of end stage COPD, failure to thrive, and dementia How can I deal with this situation? January 2021 Ex-Smokers - Start Here! Doctor told her she might not make it to the weekend last weekend she passed that and is still here but barely. Despite all of that, my mom has been doing pretty good. 2., 3. PART 3. Learn what the symptoms of COPD are so that you can get help here. PART 5. A dying patient may sleep excessively due to lack of energy, as part of the body shutting down, or as a result of medications that cause drowsiness. 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